So Many Updates

The geneticists just called and confirmed that the tests were normal and gave me a lot more information. Apparently there are about three more levels of tests they will want to do before they can completely rule out a genetic defect altogether. However, his blood test coming back normal is still a GREAT thing! If a genetic defect is formed at conception it will be evident in all areas of the body; blood cells, skin tissue, etc. If it is formed a few weeks after conception that means part of the body has formed before being effected. So now they will be doing another chromosomal test on his skin tissue as well as a test to specifically address Cornelia De Lange's. Their primary concern is no longer Trisomy 18, AMEN! These tests may take about 9 weeks before they are both performed and I have the results back. Little Zane needs to grow a bit more before they can do the skin tissue test! Following those tests there a few other levels of testing that will be done, we still need lots of prayer!

The good news is when they did his echo today the hole in his heart was still open but they decided against surgery because Zane is not symptomatic. It may close on it's own as he continues to grow, but for now we will continue to monitor him! Also, the swelling in his brain has NOT increased! What a blessing! Last but definitely not least, and what I am most excited about; they are going to begin feeding him breastmilk today through a feeding tube- 1/2ml ever 6 hours! He REALLY needs this so this is WONDERFUL! Thank you all for you many prayers. The Lord is Moving!

The Geneticist just called and confirmed that the tests were normal and gave me a lot more info. Apparently there are about 3 more levels of tests they'll want to do b4 they can completely rule out a genetic defect altogether but his blood test coming back normal is still a GREAT thing. Next they'll do a skin tissue test but they need to give him a few more wks to grow! please continue 2 pray for R lil warrior ♥