Cornelia De Lange Baby

Cornelia De Lange Baby
Zane Owen-June 27, 2011.~1lb 15oz-13in

Sleeping Sweetly

Sleeping Sweetly

Monday, July 11, 2011

Go Zane Go!

(Grab your tissues Girls!)
~The doctor called today and gave me a lot of info about tests they ran on Zane today. They think that the hole in his esophagus has closed but not positive! PTL! They are doing an echo tomorrow to see if the hole in his heart has closed, please continue to pray for that! They did a test today to see if they can start him on breastmilk through a feeding tube, as they put the contrast down Zane had an aspiration and it caused his lungs to collapse so he will have to be back on the jet ventilator for a couple of days. We will know in a few days if he will be able to tolerate the feeding tube - pray :) Tomorrow they will also check the swelling on his brain so please pray that it is stable or has reduced in size! okay get ur tissues ...

As i was about to get off the phone i caught myself and said "oh did you know if they got the test results in from the chromosomal testing?" and the doctor said "oh, yes i saw a note in his chart about that and the tests came back completely normal." "Normal? As in Normal, NORMAL?!?" "yes, normal. i will talk to the geneticists tomorrow and have them call you but i have a note that says the results were normal, NO genetic defects!" AHHHH!!!! i LOVE JESUS SOO SOO MUCH, wow HE IS AMAZING!

So what exactly does this mean?- He was tested for every known genetic defect from down's syndrome, to trisomy 18 to cornelia de lange, all of them and he doesnt have ANY of them! We have now ruled out all KNOWN genetic defects including the LETHAL ones! Thank you thank you jesus!!!! You have overwhelmed me w/ your love and i am completely undone! IF Zane does have a genetic defect it is something that has never been diagnosed before and that is still a possibility. BUT, i believe this means that at this point they will begin treating Zane as a preemie w/ just preemie struggles and no genetic defect! Thank you everyone SO much for praying and PLEASE continue! Zane still has a BIG BATTLE ahead but this was a HUGE HURDLE to overcome! Doctors had told me early in the pregnancy that he would not survive b/c he would have trisomy 18 and pushed me to have an abortion and now here he is born 3mos premature without trisomy or any defect and ALIVE! Thank goodness this was in the Lord's hands! Amen! I just wish that i could tell every woman that faces this kind of news in a pregnancy Zane's story so that they could know the power of prayer and how prevalent God is TODAY. God is MOVING today! He is performing miracles all around us! Please keep praying and be blessed!

1 comment:

  1. Awesome brings tears of joy to my eyes Zane is in God's hands and improving each and every day! Thank you Jesus! God bless and Prayers,
    Jane
    xoxo

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